Today was an emotional day. We said goodbye to a very special Aunt. Of course we were all sad and missing her, the memories help get us through, with laughter and some tears as well.
When Carson was diagnosed, a worry was and still is, what will others think, how will they interact, how will they treat him.
Our family and friends have accepted Carson 1000% - they love him no different then Reed. It always amazes me that when we do go out of our normal and bring Carson out of his normal and push him, how our family and friends go beyond to make him comfortable and do things maybe a little different because that is what would make him happier.
I want to share a few memories that I can think of...
If you knew my Grandpa, you knew he had a huge sense of humor. And he gave all of his Grand kids nicknames...Linus, Corky, Corny... and Carson he called Oscar. No idea why but he did. (I even have a toy license plate with the name Oscar in my keepsake box) but after Carson was diagnosed, Grandpa stopped calling him Oscar. One day I asked him why? He said,Carson has a lot going on in his head, and he doesn’t need me to call him a different name and making it confusing for him. 90 years old and he learned what he could about a diagnosis that some grown adults still don’t get.
3 years ago, Aunt Naida came for a visit and she had lost her hair due to the chemo, so she was wearing a beanie on her head. Carson had watched her for a while and wouldn’t you know it that stinker, as quick as a bunny ran down the steps and over to her, pulled that beanie off her head and with a giggle, he flung it across the room. I was embarrassed that he did that to Aunt Naida. But she wasn’t. Shocked for a second but she just laughed. She said he doesn’t understand why I am wearing a hat inside. Its okay.
Every time we saw each other after that, she talked about it and every time we giggled.
Every time we saw each other after that, she talked about it and every time we giggled.
Last fall we came down to visit the family and went to Aunt Ginny and Uncle Donnie's. And even though Uncle Donnie was sick from his cancer, he went above and beyond to make sure Carson was comfortable. He knew how much Carson loved to draw, so he got an easel out and markers and set it up for Carson. He sat down and worked with him on an App on his iPad that helped with talking. It really was such a heat warming thing to watch.
So many more memories...I could go on and on.
We are so blessed and thankful, that on this journey we have so many family and friends who have adapted, accepted and loved our amazing boy just as much as we have.
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